SEDS - Sussex Ehlers-Danlos Syndromes & Hypermobility Support

COVID-19 UPDATE: Your support is absolutely vital to making sure causes across our communities stay open at this critical time.

Next Horsham District Community Lottery draw on Sat 6 June at 8PM

The draw is in 3 days 7 hours 12 minutes!

Raising £442.00 a year

17 tickets

17 tickets of 50 ticket goal

We need you now more than ever!

About Us:

Sussex Ehlers-Danlos Syndromes and Hypermobility Support (SEDS) is a volunteer-led community group that provides support to sufferers of Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) and their carers, families, and friends, in Sussex.

There is little NHS support for sufferers as it is rarely-known and not often diagnosed for many years. As the condition affects the connective tissue it can impact people in a huge number of ways, which is one of the reasons getting a diagnosis can be complicated, and many of our members weren't diagnosed until their 40s or later despite having the condition since birth. We hope to change this as earlier diagnosis can make a big difference to sufferers later in life and we provide support to anyone that needs it regardless of age, race or gender.

We are raising funds to support members of our group for example by running regular meetings in community venues, and helping them get the support they need for both their physical and mental health. We also part-fund activities such as Pilates, horse riding, acupuncture, and hydrotherapy to support members. We make sure we source the best local people with the relevant knowledge.

Sharing knowledge and supporting members has already saved two lives - help us save more and support local residents. 

Thank you for your support

Jane Green

Recent Supporters:

Mr P supported Cruse Bereavment Care West Sussex Area with 3 tickets

1 hours ago

Mr H supported Roffey FC with 2 tickets

2 hours ago

Mrs F supported Cruse Bereavment Care West Sussex Area with 1 ticket

16 hours ago

Ms S supported West Sussex Mediation Service with 1 ticket

20 hours ago

Mrs B supported Atlantis Swimming Club with 2 tickets

23 hours ago

Mr W supported Roffey FC with 1 ticket

26 hours ago

Latest Draw

Sat 30 May 2020

Why Support?


Support your cause

Feel great knowing 60% of ticket sales will go to good causes - 50% to your chosen cause and 10% to other causes in Horsham District.


Only £1 per week

That's right, unlike many other lotteries Horsham District Community Lottery tickets are only £1 per week


Great prizes

Each ticket has a 1 in 50 chance to win with a top prize of £25,000!

Gift vouchers

Fancy treating your loved ones to something a little different? We’ve got just the thing!